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You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 11, JoAnne Robb, Courtesy of Wisdom Shared Podcast with Carole Blueweiss._”

“When we first were diagnosed—you’ll see that I’m using the word ‘we’; I think of [Type 1] as a family disease in a lot of ways, especially when kids are young. It’s too much for the kids to carry by themselves.”

“When I thought about what would be hard for a kid around diabetes management, I would have thought of the shots and the needles and the pokes, but really what’s hard is having this constant numbers game.”

“There’s a lot of anxiety about being a parent of a kid with Type 1. And I feel like some of the information out there kind of heightens that anxiety. I feel like my contribution to this dialogue is to say, there’s a way to do this more calmly.”

“Pump supplies are really expensive, CGM is really expensive, insulin is really expensive.”

“How we approach [Type 1 Diabetes] emotionally truly makes a difference in our relationship to the disease…and ultimately in our children’s relationship to the disease.”

“And the other thing that ‘s been completely invaluable, which I could not pitch more strongly, is diabetes camp…we went to family camp and we gained a lot of community, but also a lot of information.

“Rstricting food too much can have a mental health boomerang effect that you really don’t want.”

“This is not just a medical condition, even though it seems like it is, It’s also an emotional condition…and a lowercase trauma.”

“I do think that the way that parents talk about this trauma of diabetes makes a difference in the child’s relationship to the disease.”

“Learning Diabetes is like drinking from a fire hose.”

“The Diabetes community in general is very generous about wanting to help each other because we all know exactly what we’re going through.”

“My biggest piece of advice is that you will learn this and your child will be okay and you will be okay. And that doesn’t mean everything will be good all the time, but this is survivable.”

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LEARN MORE ABOUT THE HIGH PRICE OF INSULIN

Wisdom Shared with Carole Blueweiss
Wisdom Shared with Carole Blueweiss
Type 1 Diabetes:Art & Science
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